Distress e percepção de doença em adultos com diabetes mellitus tipo 1

Autores

  • Gracielie da Silva Campos Universidade do Vale do Rio dos Sinos
  • Tonantzin Ribeiro Gonçalves Universidade do Vale do Rio dos Sinos
  • Priscila Goergen Brust-Renck Universidade do Vale do Rio dos Sinos

DOI:

https://doi.org/10.34019/1982-1247.2024.v18.37612

Palavras-chave:

Complicações do diabetes; angústia mental; estresse; percepção da doença.

Resumo

O objetivo foi compreender a relação entre aspectos demográficos, econômicos, clínicos e de percepção da doença com o sofrimento mental de 113 adultos com DM1 de 18 anos ou mais. Os participantes responderam questionário online contendo: Diabetes Distress Scale e o Brief Illness Perception Questionnaire. Os resultados de testes de correlação e comparação de médias mostraram que participantes com maior sofrimento emocional e estresse relacionado ao esquema terapêutico apresentavam menor renda individual e pertenciam a classes sociais mais baixas. Esses escores estiveram positivamente associados com as representações tanto emocionais como cognitivas da doença como mais ameaçadora.

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Referências

Apolinario, P. P., Trevisan, D. D., Rodrigues, R. C., Jannuzzi, F. F., Ferreira, J. F., de Oliveira, H. C., Araújo, E. P., & de Melo Lima M. H. (2016). Psychometric

Performance of the Brazilian Version of the Diabetes Distress Scale in Patients With Diabetes Mellitus Type 2. Journal of Nursing Measurement. 24(2), 101-13. doi: 10.1891/1061-3749.24.2.E101

Associação Brasileira de Empresas de Pesquisa (ABEP). Critério Brasil. (2019). Recuperado de: www.abep.org/criterioBr/01_cceb_2019.pdf

Associação Nacional de Atenção ao Diabetes (2021). Recuperado de: http://www.anad.org.br/

Broadbent, E., Petrie, K. J., Main, J., & Weinman, J. (2006). The Brief Illness Perception Questionnaire. Journal of Psychosomatic Research, 60, 631-637. doi: 10.1016/j.jpsychores.2005.10.020

Carona, C., Pereira M., Moreira, H., Silva, N. M., & Canavarro, C. (2013). The Disability Paradox Revisited: Quality of Life and Family Caregiving in Pediatric Cerebral Palsy. Journal of Child and Family Studies. 22, 971-986. doi: 10.1007/s10826-012-9659-0

Chew, B. H., Vos, R. C., Stellato, R. K., Ismail, M., & Rutten, G. E. H. M. (2018). The effectiveness of an emotion‐focused educational programme in reducing diabetes distress in adults with Type 2 diabetes mellitus (VEMOFIT): a cluster randomized controlled trial. Diabetic Medicine, 35(6), 750-759. doi: 10.1111/dme.13615

Coccaro, E. F., Lazarus, S., Joseph, J., Wyne, K., Drossos, T., Phillipson, L., & de Groot, M. (2021). Emotional Regulation and Diabetes Distress in Adults With Type 1 and Type 2 Diabetes. Diabetes care, 44(1), 20–25. doi: 10.2337/dc20-1059

Curcio, R., Alexandre, N. M. C., Torres, H. C., & Lima, M. H. M. (2012). Translation and adaptation of the "Diabetes Distress Scale - DDS" in Brazilian culture. Acta Paulista de Enfermagem. 25(5), 762-767. doi: 10.1590/S0103-21002012005000025

Decat, C. S., Laros, J. A., & Araujo, T. C. C. F. de. (2009). Distress Thermometer: validation of a brief screening instrument to detect distress in oncology patients. PsicoUSF. 14(3), 253–260. doi: 10.1590/S1413-82712009000300002

Edelman, S., Belton, A., Down, S., Capehorn, M., Gamerman, V., Nagel, F., Lee, J., Emmerson, J., & Polonsky, W. H. (2019). Physician–patient communication at prescription of an additional oral drug for type 2 diabetes and its links to patient outcomes–New findings from the global IntroDia® study. Diabetes research and clinical practice, 149, 89-97. doi: 10.1016/j.diabres.2019.01.020

Fisher L., Glasgow R. E., Mullan J. T, Skaff M. M., & Polonsky W. H. (2008). Development of a brief diabetes distress screening instrument. Annals of Family Medicine. 6(3), 246-52. doi: 10.1370/afm.842

Fisher, L., Polonsky, W. H., Hessler, D. M., Masharani, U., Blumer, I., Peters, A. L., Strycker L. A., & Bowyer, V. (2015). Understanding the sources of diabetes distress in adults with type 1 diabetes. Journal of Diabetes and its Complications, 29(4), 572-577. doi: 10.1016/j.jdiacomp.2015.01.012

Fisher, L., Hessler, D., Polonsky, W., Strycker, L., Guzman, S., Bowyer, V., Blumer, I., & Masharani, U. (2018). Emotion regulation contributes to the development of diabetes distress among adults with type 1 diabetes. Patient Education and Counseling. 101(1), 124-131. doi: 10.1016/j.pec.2017.06.036

Fisher, L., Hessler, D., Polonsky, W. H., Masharani, U., Guzman, S., Bowyer, V., Strycker L, Ahmann A, Basina M, Blumer I, Chloe C, Kim S, Peters AL, Shumway M, & Weihs K. & Wu, P. (2018). T1-REDEEM: a randomized controlled trial to reduce diabetes distress among adults with type 1 diabetes. Diabetes Care, 41(9), 1862-1869. doi: 10.2337/dc18-0391

Fisher, L., Polonsky, W. H., & Hessler, D. (2019). Addressing diabetes distress in clinical care: a practical guide. Diabetic Medicine, 36(7), 803-812. doi: 10.1111/dme.13967

Flickinger, T. E., Saha, S., Roter, D., Korthuis, P. T., Sharp, V., Cohn, J., Moore, R. D., Ingersoll, K. S., & Beach, M. C. (2016). Respecting patients is associated with more patient-centered communication behaviors in clinical encounters. Patient education and counseling, 99(2), 250-255. doi: 10.1016/j.pec.2015.08.020

Gherman, A., Schnur, J., Montgomery, G., Sassu, R., Veresiu, I., & David, D. (2011). How are adherent people more likely to think? A meta-analysis of health beliefs and diabetes self-care. The Diabetes Educator, 37(3), 392-408. doi: 10.1177/0145721711403012

Hajos, T. R., Polonsky, W. H., Twisk, J. W., Dain, M. P., & Snoek, F. J. (2011). Do physicians understand Type 2 diabetes patients’ perceptions of seriousness; the emotional impact and needs for care improvement? A cross-national survey. Patient education and counseling, 85(2), 258-263. doi: 10.1016/j.pec.2010.08.019

Hessler, D. M., Fisher, L., Polonsky, W. H., Masharani, U., Strycker, L. A., Peters, A. L., Blumer, I., & Bowyer, V. (2017). Diabetes distress is linked with worsening diabetes management over time in adults with Type 1 diabetes. Diabetic medicine : a journal of the British Diabetic Association, 34(9), 1228–1234. doi: 10.1111/dme.13381

Joensen, L. E., Tapager, I., & Willaing, I. J. D. M. (2013). Diabetes distress in Type 1 diabetes - a new measurement fit for purpose. Diabetic medicine, 30(9), 1132-1139. doi: 10.1111/dme.12241

Joensen, L. E., Andersen, M. M., Jensen, S., Nørgaard, K., & Willaing, I. (2017). The effect of peer support in adults with insulin pump-treated type 1 diabetes: a pilot study of a flexible and participatory intervention. Patient preference and adherence, 11, 1879. doi: 10.2147/PPA.S142204

Kiriella, D. A., Islam, S., Oridota, O., Sohler, N., Dessenne, C., de Beaufort, C., Fagherazzi, G., & Aguayo, G. A. (2021). Unraveling the concepts of distress, burnout, and depression in type 1 diabetes: A scoping review. Clinical Medicine, 40, 101118. doi:10.1016/j.eclinm.2021.101118

Malaquias, T. S. M., Marques, C. D. C., Faria, A. C. P., Pupulim, J. S. L., Marcon, S. S., & Higarashi, I. H. (2016). A criança e o adolescente com diabetes mellitus tipo 1: desdobrar do cuidado familiar. Cogitare Enfermagem. 21(1), 01-07. doi: 10.5380/ce.v21i4.42010

Marques, R. D. M. B., Fornés, N. S., & Stringhini, M. L. F. (2011). Fatores socioeconômicos, demográficos, nutricionais e de atividade física no controle glicêmico de adolescentes portadores de diabetes melito tipo 1. Arquivos Brasileiros de Endocrinologia & Metabologia, 55, 194-202. doi: doi.org/10.1590/S0004-27302011000300004

McGregor, B. A., Dolan, E. D., Murphy, K. M., Sannes, T. S., Highland, K. B., Albano, D. L., & Ceballos, R. M. (2015). Cognitive behavioral stress management for healthy women at risk for breast cancer: a novel application of a proven intervention. Annals of Behavioral Medicine. 49(6), 873-884. doi: 10.1007/s12160-015-9726-z

Montgomery, M., & McCrone, S. H. (2010). Psychological distress associated with the diagnostic phase for suspected breast cancer: Systematic review. Journal of Advanced Nursing. 66(11), 2372–2390. doi: 10.1111/j.1365-2648.2010.05439.x

Morris, H. L., Carlyle, K. E., & Lafata, J. E. (2016). Adding the patient’s voice to our understanding of collaborative goal setting: How do patients with diabetes define collaborative goal setting?. Chronic Illness, 12(4), 261-271. doi: 10.1177/1742395316648748

Nogueira, G. S. (2012). Adaptação e validação do Brief Illness Perception Questionnaire (Brief IPQ) para a cultura brasileira. Recuperado de: http://repositorio.bce.unb.br/handle/10482/10777

Nogueira, G. S., Seidl, E. M. F., & Tróccoli, B. T. (2016). Análise Fatorial Exploratória do Questionário de Percepção de Doenças Versão Breve (Brief IPQ). Psicologia: Teoria e Pesquisa. 32(1), 161-168. doi: 10.1590/0102-37722016011871161168

Oliveira, A. P. L., Sarmento, S. S., Mistura, C., Jacobi, C. S., Girardon-Perlini, N. M. O., Lira, M. O. S. C., Vieira, M. C. A., & Melo, M. C. P. (2013). Experiência de familiares no cuidado a adolescentes com diabetes mellitus Tipo 1. Revista de Enfermagem da UFSM. 3(1), 133-143. doi: 10.5902/217976928074

Peimani, M., Nasli-Esfahani, E., & Sadeghi, R. (2020). Patients’ perceptions of patient–provider communication and diabetes care: A systematic review of quantitative and qualitative studies. Chronic illness, 16(1), 3-22. doi: 10.1177/1742395318782378

Pennafort, V. P. S., Queiroz, M. V. O., Gomes, I. L. V., & Rocha, M. F. F. (2018) Instructional therapeutic toy in the culture care of the child with diabetes type 1. Revista Brasileira de Enfermagem. 71, 1334-1342. doi: 10.1590/0034-7167-2017-0260

Phillips, L. A., Leventhal, H., & Leventhal, E. A. (2012). Physicians communication of the common sense self regulation model results in greater reporemorted adherence than physicians’ use of interpersonal skills. British Journal of Health Psychology. 17(2), 244-257. doi: 10.1111/j.2044-8287.2011.02035.x

Polonsky W. H., Fisher L., Earles J., Dudl R. J., Lees J., Mullan J., & Jackson R. A. (2005). Assessing psychosocial distress in diabetes: development of the diabetes distress scale. Diabetes Care. 28(3), 626-31. doi: 10.2337/diacare.28.3.626

Polonsky, W. H., Capehorn, M., Belton, A., Down, S., Alzaid, A., Gamerman, V., Nagel, F., Lee, J. & Edelman, S. (2017). Physician–patient communication at diagnosis of type 2 diabetes and its links to patient outcomes: New results from the global IntroDia® study. Diabetes research and clinical practice, 127, 265-274. doi: 10.1016/j.diabres.2017.03.016

Schmidt, C. B., van Loon, B. P., Vergouwen, A. C. M., Snoek, F. J., & Honig, A. (2018). Systematic review and meta‐analysis of psychological interventions in people with diabetes and elevated diabetes‐distress. Diabetic Medicine, 35(9), 1157-1172. doi: 10.1111/dme.13709

Schiøtz, M. L., Bøgelund, M., Almdal, T., Jensen, B. B., & Willaing, I. (2012). Social support and self‐management behaviour among patients with Type 2 diabetes. Diabetic Medicine, 29(5), 654-661. doi: 10.1111/j.1464-5491.2011.03485.x

Senders, A., Sando, K., Wahbeh, H., Hiller, A. P., & Shinto, L. (2016). Managing psychological stress in the multiple sclerosis medical visit: Patient perspectives and unmet needs. Journal of health psychology, 21(8), 1676-1687. doi: 10.1177/1359105314562084

Silveira, M.S.V.M., Moura Neto, A., Sposito, A.C., Siminerio L., & Pavin. E. J. (2019). Low empowerment and diabetes regimen distress are related to HbA1c in low income type 1 diabetes patients in a Brazilian tertiary public hospital. Diabetol Metab Syndr 11, 6. doi:10.1186/s13098-019-0404-3

Skinner, T. C., Joensen, L., & Parkin, T. (2020). Twenty‐five years of diabetes distress research. Diabetic Medicine, 37(3), 393-400. doi: 10.1111/dme.14157

Sociedade Brasileira de Diabetes (2021). Recuperado de: http://www.diabetes.org.br/

Souza, J. R., & Seidl, E. M. F. (2014). Distress e enfrentamento: da teoria à prática em psico-oncologia. Brasília Médica. 50(3), 242-252. doi: 10.14242/2236-5117.2014v50n3a96p252

Sparremberger, F., Santos, I., & Lima, R. C. (2003). Epidemiologia do distress psicológico: estudo transversal de base populacional. Revista de Saúde Pública. 37(4), 434-439. doi: 10.1590/S0034-89102003000400007

Stahl-Pehe, A., Glaubitz, L., Bächle, C., Lange, K., Castillo, K., Tönnies, T., Yossa, R., Holl, R. W., & Rosenbauer, J. (2019). Diabetes distress in young adults with early-onset Type 1 diabetes and its prospective relationship with HbA1c and health status. Diabetic medicine: a journal of the British Diabetic Association, 36(7), 836–846. doi:10.1111/dme.13931

Sturt, J., Dennick, K., Due-Christensen, M., & McCarthy, K. (2015). The detection and management of diabetes distress in people with type 1 diabetes. Current diabetes reports, 15(11), 1-14. doi: 10.1007/s11892-015-0660-z

van Duinkerken, E., Snoek, F. J., & de Wit, M. (2020). The cognitive and psychological effects of living with type 1 diabetes: a narrative review. Diabetic medicine: a journal of the British Diabetic Association, 37(4), 555–563. doi:10.1111/dme.14216

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Publicado

2024-02-01