The waiting room in psychology as a place of support for the family caregiver of chronic renal patients on hemodialysis: an experience report
un relato de experiencia
DOI:
https://doi.org/10.34019/1982-8047.2021.v47.35562Keywords:
Waiting Rooms, Hospital Psychology, Mental Health, Hemodialysis, Family-caregiverAbstract
Introduction: Population aging has brought about major changes in the incidence and prevalence of Chronic Non-Communicable Diseases (NCDs) and among them is Chronic Kidney Disease (CKD), currently considered a major public health problem. One of the therapies used in the treatment of end-stage CKD is hemodialysis, which requires a series of changes and adaptations in the patient's life. The illness for the caregiver family is configured as a painful and difficult time to face, in which they need recurrent reorganizations and adaptations. A family member regularly takes over the care and their needs are often neglected or not prioritized. Thus, psychology as part of the multidisciplinary care team has the role of promoting spaces for welcoming and caring for the caregiver. Objectives: to describe the experience of a waiting room with family members and caregivers of patients at the Nephrology Unit of the University Hospital of Juiz de Fora (HU-UFJF/Ebserh). Experience Report: The waiting room took place from September to December 2020, aiming to provide a space for reception, support, exchange of experiences and discussions of relevant topics that permeate care. The interventions took place every two weeks, with an average duration of one hour, and were conducted by two resident psychologists. The meetings were attended by an average of five family members and the themes were proposed by the participants themselves. Nine meetings were held to discuss themes such as resilience, empathy, communication styles and family conflicts. Conclusion: The intervention allowed a space for listening, welcoming, reflecting and exchanging experiences, providing the active participation of these caregivers and the humanization of care. Furthermore, it can be concluded that the waiting room can be a powerful tool to be used by psychologists in the context of chronic diseases, especially within the scope of the Unified Health System (SUS).
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References
Barreto MS, Carreira L, Marcon SS. Envelhecimento populacional e doenças crônicas: reflexões sobre os desafios para o Sistema de Saúde Pública. Revista Kairós Gerontologia. 2015; 18(1):325-39.
International Society of Nephrology. ISN Global Kidney Health Atlas [Internet]. [citado em 2021 Jul 01]. 2019. Acesso em: https://www.scielo.br/j/jbn/a/QwHfyDrdJ3DHqhsJfPtT5QM/?format=pdf&lang=pt
Neves PDMM, Sesso RCC, Lugon JR, Nascimento MM. Inquérito brasileiro de diálise 2019. Braz J Nephrol. 2021; 43(2):217-27.
Slegar CT, Zulkarnaln, Nasution SZ, Purba JM, Karota E, Bayhakkl et al. Family concern: facilitating self-management of patients undergoing hemodialysis. Enfermería Clínica. 2020; 30:10-3.
Siregar CT, Zulkarnain, Nasution SZ, Purba JM, Karota E, Bayhakki et al. Family concern: facilitating self-management of patients undergoing hemodialysis. Enferm Clin. 2021; 30(S3):10-3.
Pedroso VSM, Siqueira HCH. Insuficiência renal crônica: o processo de adaptação familiar. Ensaios Cienc Cienc Biol Agrar Saúde. 2016; 20(2):79-85.
Schwartz E, Muniz RM, Burille A, Zillmer JGV, Silva DA, Feijó AM et al. As redes de apoio no enfrentamento da doença renal crônica. Rev Mineira Enferm. 2009; 13(2):193-201.
Sajadi SA, Ebadi A, Moradian ST. Quality of life among family caregivers of patients on hemodialysis and its relevant factors: a systematic review. International journal of community based nursing and midwifery. 2017; 5(3):206-18.
Pereira BS, Fernandes NS, Melo NP, Abrita R, Grincenkov FRS, Fernandes NMS. Beyond quality of life: a cross sectional study on the mental health of patients with chronic kidney disease undergoing dialysis and their caregivers. Health and Quality of Life Outcomes. 2017; 15:74.
Tong A, Sainsbury P, Craig JC. Support interventions for caregivers of people with chronic kidney disease: a systematic review. Nephrol Dial Transplant. 2008; 23(12):3960-5.
Maldaner CR, Beuter M, Brondani CM, Budó MLD, Pauletto MR. Fatores que influenciam a adesão ao tratamento na doença crônica: o doente em terapia hemodialítica. Rev Gaúcha Enferm. 2008; 29(4):647-53.
Celik G, Annagur BB, Yılmaz M, Demir T, Kara F. Are sleep and life quality of family caregivers affected as much as those of hemodialysis patients? Gen Hosp Psychiatry. 2012; 34(5):518-24.
Ministério da Saúde (BR). Portaria n° 389, de 13 de março de 2014 [Internet]. [citado em 2021 Jul 01]. 2014. Acesso em: https://bvsms.saude.gov.br/bvs/saudelegis/gm/2014/prt0389_13_03_2014.html
Rosa J, Barth PO, Germani ARM. A sala de espera no agir em saúde: espaço de educação e promoção à saúde. Perspectiva. 2011; 35(129):121-30.
Teixeira ER, Veloso RC. O grupo em sala de espera: território de práticas e representações em saúde. Texto Contexto Enfermagem. 2006; 15(2):320-5.
Malagris LN, Miyazaki MC, Domingos NAM, Zanin CR. Terapia cognitivo-comportamental em grupo para demandas em contextos de saúde. In: Neufeld CB, Rangé BP. Terapia cognitivo-comportamental em grupos: das evidências à prática. Porto Alegre: Artmed; 2017. p. 359-72.
Silva MCOS, Silva KL, Silva PAB, Silva LB, Vaz FMO. A sala de espera como espaço de educação e promoção de saúde à pessoa com insuficiência renal crônica em hemodiálise. J Res Fundam Care Online. 2013; 5(3):253-63.
Nóbrega VM, Coutinho SED, Reichert APS, Collet N, Silva KL. Imposições e conflitos no cotidiano das famílias de crianças com doença crônica. Esc Anna Nery. 2012; 16(4):781-8.
Santos AF. A resiliência e sua forma de promoção em famílias que convivem com a doença crônica [Trabalho de conclusão de curso]. Belo Horizonte: Universidade Federal de Minas Gerais; 2011.
Cruz TH, Perlini NMOG, Beuter M, Coppetti LC, Dalmolin A, Piccin C. Apoio social percebido por cuidadores familiares de pacientes renais crônicos em hemodiálise. Rev Min Enferm. 2018; 22:e-1119.
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Copyright (c) 2022 Karine Soriana Silva de Souza, Daniela de Oliveira Martins Mendes Daibert, Priscilla Aparecida de Aquino Batista Noé
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