Necessities of caregivers of children with neurodevelopmental disorder: an overview

Abstract

Objective: analyze strategies that can provide health support for families/caregivers of children diagnosed with neurodevelopmental disorders (NDD) by the health system and other support networks.

Methods: it is an overview of reviews structured according to the PRISMA checklist and registered on the PROSPERO CRD42018102193 platform. Searches were performed on ten literature databases with standardized MESH descriptors. Narrative analysis was carried out to systematize elements of the strategies, aspects of implementation and equity.Results: 3215 titles and abstracts were screened, after duplicates were removed and the title and abstract were read, 127 were selected for complete reading, and 11 met the eligibility criteria. The caregivers needs were approached in four strategies: 1. Encourage that health care strategies are centered on the family of children with NDD, 2. Promote better living conditions for families, through emotional, social and financial support, 3. Encourage strengthening affective bonds between caregivers and health professionals, 4. Promote lines of care for caregivers, centered on autonomy and self-care. Conclusions: The four strategies addressed seek to meet the needs of caregivers of children with NDD to promote greater support for families. They are independent, but complementary, and it is important that the four pillars are present for quality support.